Sue Miers wins the Unsung Hero category in the 2018 HESTA Community Sector Awards
Sue Miers was recognised for her voluntary work supporting families struggling to manage and understand Fetal Alcohol Spectrum Disorders (FASD) and for playing an instrumental role for the past 20 years establishing the recognition of this disability in Australia.
Sue is the founder of the National Organisation for Fetal Alcohol Spectrum Disorders (NOFASD). Although she retired from the board in 2015, she continues to volunteer and provide support to parents, carers and employees working with those living with FASD
For the past 20 years, NOFASD has focused on prevention and Sue’s continuing voluntary contribution has led the way in building NOFASD’s social media presence through awareness campaigns that have been viewed by hundreds of thousands of Australians.
“There is still not a lot of understanding about FASD in the wider community and in our education system,” Sue said.
“Parents and carers often struggle to get their children understood because these children actually have undiagnosed brain damage. It can be a very lonely journey and having other parents with lived experience to talk to can be really helpful.”
Sue said the prize money would help NOFASD expand their support services and advocacy.
“We want to increase the resources and support we can provide parents and children, and at the same time keep raising awareness, which will hopefully lead to less children born with FASD and more positive outcomes for those who are living with FASD.”