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This article explores factors outside of current FASD diagnostic criteria that could be included as part of a holistic assessment process to ensure better support to improve outcomes.

Date:
September 2023
Journal name:
Alcohol Clinical and Experimental Research
Authors:
Natasha Reid, Nykola Kent, Nicole Hewlett, Kerryn Bagley, Tracey W. Tsang, Sarah Goldsbury, Robyn Williams, Lisa Akison, Lorelle Holland, Chelsea Vanderpeet, Michael Doyle, Nirosha Boaden, Nicole Hayes.
Page last updated 24 January 2024

This position paper outlines the prevalence, prevention, diagnosis, treatment and support of FASD. It proposes 10 recommendations to improve these areas, as well as the overall awareness of FASD in Australia.

Date:
August 2016
Authors:
Australian Medical Association
Page last updated 14 July 2023

Individuals with lived experience of FASD hold expertise on their own lives and family needs, and their insights on the assessment and diagnostic process are valuable to improving service delivery and informing the provision of meaningful, person- and family-centred care. This systematic review draws on qualitative evidence on the lived experiences of the diagnostic assessment process for FASD.

Date:
May 2023
Journal name:
Alcohol Clinical and Experimental Research
Authors:
N. Hayes, K. Bagley, N. Hewlett, E. J. Elliott, C. F. Pestell, M. J. Gullo, Z. Munn, P. Middleton, P. Walker, H. Till, D. C. Shanley, S. L. Young, N. Boaden, D. Hutchinson, N. R. Kippin, A. Finlay-Jones, R. Friend, D. Shelton, A. Crichton, N. Reid.
Page last updated 10 May 2023

There have been significant advances in assessment processes and diagnostic criteria since the effects of prenatal alcohol exposure were first described in the medical literature. However, a key issue that continues to plague the FASD field is a lack of agreement regarding terminology, and criteria for describing and diagnosing FASD. A significant opportunity exists for the FASD field to work together and utilise the best available evidence to advance an empirically based approach to FASD diagnosis.

Date:
February 2023
Journal name:
Alcohol: Clinical and Experimental Research
Authors:
Natasha Reid
Page last updated 21 March 2023

Early diagnosis of children with fetal alcohol spectrum disorder (FASD) assists in implementing critical early support. The challenge lies in having a diagnostic process that enables valid and reliable assessment of domains of functioning in young children, with the added complexity that many children will also have co-occurring exposure to childhood adversity that is likely to impact these domains. This study examines diagnostic assessment of FASD in young children using the Australian Guide to the Diagnosis of FASD. Ninety-four children (aged 3 to 7 years) with confirmed or suspected prenatal alcohol exposure were referred to two specialist FASD clinics for assessment in Queensland, Australia.

Date:
February 2023
Journal name:
Alcoholism, clinical and experimental research
Authors:
Sharon Dawe, Elizabeth Eggins, Joseph Betts, Heidi Webster, Tania Pomario, Jessica Doak, Ned Chandler-Mather, Denise Hatzis, Haydn Till, Paul Harnett, Andrew Wood, Doug Shelton.
Page last updated 7 March 2023

This review paper gives a comprehensive overview of FASD research globally. This paper includes a review of: international prevalence of FASD and FASD; the mechanisms and pathophysiology of prenatal alcohol exposure; diagnosis, screening and prevention; management; quality of life; and outlook.

Date:
February 2023
Journal name:
Nature Reviews Disease Primer
Authors:
Svetlana Popova, Michael E. Charness, Larry Burd, Andi Crawford, H. Eugene Hoyme, Raja Mukherjee, Edward Riley, Elizabeth Elliott.
Page last updated 28 February 2023

This book chapter gives an overview of the past two decades of Australian FASD research, from fiction to fact to challenges of the future.

Date:
September 2022
Book name:
Fetal Alcohol Spectrum Disorder
Chapter title:
Fetal Alcohol Spectrum Disorder in Australia: From Fiction to Fact and to the Future
Authors:
Elizabeth Elliott, Carol Bower
Page last updated 7 March 2023

As part of the Yapatjarrathati project, 47 remote health providers and community members attended a two-day workshop presenting a prototype of a culturally-safe, tiered neurodevelopmental assessment that can identify FASD in primary healthcare. Narrative analysis of the workshop transcript highlighted a collective sense of compassion for those who use alcohol to cope with intergenerational trauma, but exhaustion at the cyclical nature of FASD. There was a strong desire for a shared responsibility for First Nations children and families and a more prominent role for Aboriginal Health Workers in the assessment process. This study emphasised the benefit of continued co-design to ensure health implementation strategies match the needs of the community.

Date:
September 2022
Journal name:
International Journal of Environmental Research and Public Health
Authors:
Luke Miller, Dianne C Shanley, Marjad Page, Heidi Webster, Wei Liu, Natasha Reid, Doug Shelton, Karen West, Joan Marshall, Erinn Hawkins.
Page last updated 28 October 2022

Recognition of FASD within Australia has continued to grow, particularly with the development of the Australian Diagnostic Guide, yet the availability of FASD-specific services continues to be limited. This paper presents the views and experiences of the six sites across Australia involved indeveloping a FASD Model of Care in their local area.

Date:
June 2022
Journal name:
Journal of Fetal Alcohol Spectrum Disorder
Authors:
Kirsten R. Panton, James P. Fitzpatrick, Deepa Jeyaseelan, Sarah Hill, Carmela F. Pestell
Page last updated 1 July 2022

Substance use during pregnancy is a major health issue for both the mother and the fetus, but it also represents an important public health concern.: The aim of this review was to summarize and compare recommendations from recently published guidelines on substance use during pregnancy and especially regarding alcohol, smoking, and drug use.

Date:
October 2021
Journal name:
Obstetrical & gynecological survey
Authors:
Ioannis Tsakiridis, Artemis Christina Oikonomidou, Dimitra Rafailia Bakaloudi, Themistoklis Dagklis, Georgios Papazisis, Michail Chourdakis
Page last updated 15 June 2022