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This book chapter gives an overview of the past two decades of Australian FASD research, from fiction to fact to challenges of the future.

Date:
September 2022
Book name:
Fetal Alcohol Spectrum Disorder
Chapter title:
Fetal Alcohol Spectrum Disorder in Australia: From Fiction to Fact and to the Future
Authors:
Elizabeth Elliott, Carol Bower
Page last updated 7 March 2023

This paper explores the lived experiences of adolescents with fetal alcohol spectrum disorder (FASD) to understand: the ways in which their challenges influence daily functioning; and the personal assets and external resources that facilitate participation. Semi-structured interviews were conducted with four adolescents with FASD aged 13 to 15 years. Findings illustrated the barriers adolescents experienced regarding their daily functioning and independence. Additionally, incorporating strengths into daily activities appeared to reduce anxiety and improve participation, and adolescents desired for their unique characteristics to be recognized and appreciated.

Date:
May 2022
Journal name:
Developmental Medicine and Child Neurology
Authors:
Kelly Skorka, Jodie Copley, Catherine McBryde, Pamela J. Meredith, Natasha Reid.
Page last updated 31 May 2022

Neurodevelopmental disorders (NDD), including cerebral palsy, autism spectrum disorder and foetal alcohol spectrum disorder, are characterised by impaired development of the early central nervous system, impacting cognitive and/or physical function. Early detection of NDD enables infants to be fast-tracked to early intervention services, optimising outcomes. Aboriginal and Torres Strait Islander infants may experience early life factors increasing their risk of neurodevelopmental vulnerability, which persist into later childhood, further compounding the health inequities experienced by First Nations peoples in Australia. The LEAP-CP prospective cohort study will investigate the efficacy of early screening programmes, implemented in Queensland, Australia to earlier identify Aboriginal and Torres Strait Islander infants who are 'at risk' of adverse neurodevelopmental outcomes (NDO) or NDD.

Date:
January 2022
Journal name:
BMJ Open
Authors:
Carly R Luke, Katherine Benfer, Leeann Mick-Ramsamy, Robert S Ware, Natasha Reid, Arend F Bos, Margot Bosanquet, Roslyn N Boyd.
Page last updated 18 March 2022

This study aims to integrate cultural considerations and developmental screening into a First Nations child health check. The ‘Share and Care Check,’ an optimised child health check, was co-designed with a remote Aboriginal Community Controlled Health Organisation and led by Aboriginal Health Practitioners/Workers. Data obtained from questions regarding cultural and developmental aspects of health can assist health providers regarding the best pathway of support for a child and their family. This could ultimately contribute to closing the gap through the provision of holistic culturally appropriate services. This paper was published in 2022.

Date:
March 2022
Journal name:
Australian Journal of Primary Health
Authors:
Natasha Reid, Marjad Page, Theresa McDonald, Erinn Hawkins , Wei Liu, Heidi Webster, Codi White, Doug Shelton, Mary Katsikitis , Andrew Wood, Bronwyn Draper, Karen Moritz and Dianne C. Shanley.
Page last updated 18 March 2022

This review published in 2022 proposes a theoretical framework to support professionals in collaborating with families in the provision of services for children with fetal alcohol spectrum disorders (FASD). Existing models of family-directed care and family contextual factors relevant to planning interventions were reviewed. This information was adapted and integrated in the context of available evidence regarding the provision of evidence-based approaches for children with FASD and their families.

Date:
January 2022
Journal name:
Current Developmental Disorders Reports
Authors:
Natasha Reid, Andi Crawford, Christie Petrenko, Julie Kable & Heather Carmichael Olson
Page last updated 18 March 2022

Young people with neurodevelopmental disorders are overrepresented in the youth justice system and face many disadvantages due to their impairments. This study published in 2022 investigated what factors predict and contribute to the behavior of youth justice professionals working in the Queensland (QLD) youth justice system, utilizing a behavior change wheel framework and providing helpful directions to better support young people with neurodevelopmental conditions who are involved with the QLD youth justice system.

Date:
January 2022
Journal name:
International Journal of Forensic Mental Health
Authors:
Alanna Heanue, Matthew J. Gullo, Nicole Hayes, Hayley Passmore &Natasha Reid
Page last updated 18 March 2022

The affectional bond experienced by a mother toward her developing fetus/infant has been theorized to be a critical factor in determining infant developmental outcomes; yet there remains a paucity of research in this area, and a lack of high-quality longitudinal studies. This study aimed to examine the extent to which mother-to-infant bonding predicted infant development in a multi-wave longitudinal pregnancy cohort study (N = 1,347).

Date:
September 2021
Journal name:
J Am Acad Child Adolesc Psychiatry
Authors:
Genevieve Le Bas, George Youssef, Janqui A Masdonald, Samantha Teague, Richard Mattick, Ingrid Honan, Jennifer E McIntosh, Sarah Khor , Larissa Rossen, Elizabeth J Elliott, Steve Allsop, Lucinda Burns, Craig A Olsson, Delyse Hutchinson
Page last updated 19 January 2022

Many children affected by FASD exhibit neurocognitive delays that contribute to secondary consequences, including a disrupted school experience. Educators often have limited knowledge or experience in the identification, referral, management and accommodation of students with FASD. Effective resources and tools for educators are crucial to ensure these students are supported in their ongoing learning, development and school participation. This scoping review published in 2021 aims to identify and evaluate resources for educators that aid in the identification, management, or accommodation of students with FASD.

Date:
April 2021
Journal name:
BMJ Open
Authors:
Lees B, Elliott EJ, Allsop S, Thomas S, Riches J, Nepal S, Rice LJ, Newton N, Mewton L, Teesson M, Stapinski LA
Page last updated 19 January 2022

This scoping review published in 2022 aimed to identify and evaluate publicly available educator resources that aid in the identification, and support of students with FASD in primary/elementary school. In addition, educators and FASD experts were consulted to obtain feedback on currently available resources, and key issues and priorities for FASD resources.

Date:
January 2022
Journal name:
Health Promotion Journal of Australia
Authors:
Lees B, Riches J, Mewton L, Elliott E, Allsop S, Newton N, Thomas S, Rice L, Teesson M.
Page last updated 18 March 2022

This study published in 2021 examines the associations of substance use disorders in pregnancy with a set of neonatal outcomes. Three linked datasets of a 10-year period (2007-2016) from New South Wales, Australia, were examined. Pregnant women were identified positive for substance use disorders when at least one hospital admission during pregnancy or delivery had opioid, or cannabis, or stimulant, or alcohol or two or more of the four substance groups related ICD-10-AM diagnostic code.

Date:
July 2021
Journal name:
Substance Use & Misuse
Authors:
Oni, Helen T; Buultjens, Melissa; Mohamed, Abdel-Latif; Islam, Md Mofizul
Page last updated 2 September 2021