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Government and non-government policies

Alcohol use in pregnancy is an issue for all Australians.

FASD now has more recognition in Australia as an important, but preventable disorder. Preventing FASD requires a whole of community and government approach.

Organisations and professional groups across Australia contribute to policy development, education and training for health professionals, and contribute to new evidence, knowledge and translation activities.

National FASD Strategy

At the 2nd Australasian FASD Conference in Perth in November 2018 the Minister for Health, The Hon Greg Hunt launched the National FASD Strategy Action Plan 2018 - 2028. The Plan has been developed to provide a clear pathway of priorities and oppoetunities to improve the prevention, diagnosis, support and management of FASD in Australia.

Image of Minister for Health on screen Image David Laffan presneting at conference

You can watch a video of this launch and a presentation by Mr David Laffan, Assistant Secretary Department of Health at the FASD conference (available soon)

 

Previous national strategy

The Commonwealth Government developed a FASD Action Plan 2013/14 - 2016/17 in response to the House of Representaitves inquiry into FASD. You can read the final report FASD: The Hidden Harm

Deeble Institute for Health Policy Research

Issues Brief No 28 27 September 2018

Author: Dr Amy Finlay-Jones

Reducing harms related to alcohol use in pregnancy: Policy and practice recommendations

Gilbert + Tobin

Gilbert + Tobin has worked with people affected by FASD, their carers and NGOs in this area for a number of years, with many of these organisations throwing their support behind the need for law and policy reform.

Anne Cregan, Partner, Pro Bono who led G+T’s advocacy efforts, said many people with FASD face significant difficulty in accessing support simply because their disability doesn’t fit the Government’s current definitions.

Gilbert + Tobin is urging governments to conduct a review of law and policy to determine where people with FASD are excluded and to work together with medical professionals and advocates for people with FASD and other forms of cognitive impairment to develop a more inclusive definition of cognitive impairment for use in law and policy.

The policy document was launched in September 2018 in Sydney by Ms June Oscar AO Aboriginal and Torres Strait Islander Social Justice Commissioner and in Perth by the recently retired Chief Justice Wayne Martin AC.

When your disability doesn't fit: ending discrimination against people with FASD in New South Wales law and policy

You can read June's speech at the Sydney launch Recognition: A pathway to realising our rights and ending discrimination

When your disability doesn't fit: ending discrimination against people with FASD in Northern Territory law and policy

When your disability doesn't fit: ending discrimination against people with FASD in Victorian law and policy

When your disability doesn't fit: ending discrimination against people with FASD in Western Australian law and policy

You can also read an article about Wayne Martin's speech

When your disability doesn't fit: ending discrimination against people with FASD in Commonwealth law and policy

Alcohol Guidelines to reduce health risks from drinking alcohol

National Health and Medical Research Council

Australian Guidelines to reduce health risks from drinking alcohol

Guideline 4 Pregnancy and Breastfeeding

  • For women who are pregnant or planning a pregnancy, not drinking is the safest option
  • For women who are breastfeeding, not drinking is the safest option

National Alcohol Strategy 2018 - 2026

A public consultation to inform the strategic direction and priorities for a national alcohol strategy commenced in late 2017. 101 submissions were received - you can view the submissions here

The final strategey document has not yet been released.

West Australian Alcohol and Drug Interagency Strategy 2018-2022

Government of Western Australia Mental Health Commission
This strategy references FASD in the following sections:

  • Key initiatives p39
  • Research and development p52
  • Workforce development and capacity building p53

Pregnancy warning labels on packaged alcoholic beverages

In October 2018 the Australian and New Zealand Ministerial Forum on Food Regualtion agreed, based on the evidence, a mandatory labelling standard for pregnancy warning labels on packaged alcoholic beverages should be developed and should include a pictogram and relavant warning statement. The Forum requested Food Standards Australia and New Zealand develop this mandatory labelling standard as a priority.

Read the Final Report

State & Territory policies

Northern Territory

In December 2018 the Northern Territory Government released a whole of government strategy titled Addressing Fetal Alcohol Spectrum Disorder (FASD) in the Northern Territory 2018 - 2024.

 

Western Australia

FASD Model of Care

Developed in 2010 this documents refers to prevention, screening and early detection, diagnosis, workforce development and monitoring.

Foundation for Alcohol Research and Education

The Foundation for Alcohol Research and Education (FARE) is an independent, not-for-profit organisation working to stop the harm caused by alcohol. FARE has developed policies related to FASD Read more

FARE has also developed the Pregnant Pause campaign

Read more

Australian Medical Association

The Australian Medical Association (AMA) has developed a position paper on FASD

Read more

Royal Australian College of Physicians

The Royal Australian College of Physicians (RACP) has developed policies on alcohol and advertising

Read more

WA Coroners inquest

This 374 page report into the deaths of thirteeen children and young people in the Kimberley region of Western Australia includes references to FASD. The report by the State Coroner Ros Fogliani was published on 7 February 2019.

There is a warning on the report that the contents may be particularly distressing to some readers.

Commonwealth, state & territory inquiries

Not all enquiries and reports are specific to FASD, however they do refer to FASD and justice in sections or chapters or make reference to people with cognitive and other impairments

Senate Standing Committee on Community Affairs Inquiry Indefinite detention of people with cognitive and psychiatric impairment in Australia

Final report

Senate Standing Committee on Finance and Public Administration Access to legal assistance services

Final report

Review of the Criminal Law (Mentally Impaired Accused) Act 1996

Final Report

House of Representatives Standing Committee on Indigenous Affairs Inquiry into harmful use of alcohol in Aboriginal and Torres Strait Islander Communities

Final report

Productivity Commission inquiry into accessing justice services

Final report

House of Representatives Standing Committee on Aboriginal and Torres Strait Islander Affairs

Doing Time - Time for Doing: Indigenous youth in the criminal justice system

House of Representatives Standing Committee on Social Policy and Legal Affairs Inquiry into FASD
FASD: The Hidden Harm - Inquiry into the prevention, diagnosis and management of Fetal Alcohol Spectrum Disorders

Final report

Western Australia Legislative Assembly Education and Health Standing Committee
Foetal Alcohol Spectrum Disorder: the hidden disability

Final Report

New South Wales Law Reform Commission
Young people with cognitive and mental health impairments in the criminal justice system. Sydney: Commission NSWLR; 2010-2012.

Final Report

Legislative Assembly of the Northern Territory Select Committee on Action to prevent FASD

Final Report

National Disability Insurance Scheme (NDIS)

The National Disability Insurance Agency (NDIA) identified FASD as an important category of disability for consideration within the NDIS.

Currently the NDIS only recognises Fetal Alcohol Syndrome under 'Congenital conditions - cases where malformations cannot be corrected by surgery or other treatment and result in permanent impairment.'


NDIA contracted Telethon Kids Institute to conduct a critical review of the available published and unpublished literature relating to impairment and interventions for FASD. A report was submitted to the NDIA in 2016.


The purpose of the review was to describe the types of disability supports, services and interventions that individuals with FASD require across their life course. It is hoped that this information will inform an approach to assessment and documenting impairment associated with FASD that will enable support and intervention planning within the NDIS.

Summary key findings


The report looked at principles relating to assessment, diagnosis and planning interventions for FASD; evidence on functional domains that are impaired in people with FASD across the lifecourse, evidence for interventions to reduce impacts of functional impairment and improve overall quality of life.

The domains of functional impairment associated with FASD diagnosis are significant and distinct to each affected individual. It is established that FASD is a lifelong condition characterised by a range of significant domains of functional impairment, often requiring behavioural modification and environmental accommodation interventions.

FASD is characterised by primary disabilities which are the result of prenatal alcohol exposure. Secondary effects are those disabilities that an individual is not born with but are caused by a lack of appropriate services and supports to address the primary disabilities. Individuals affected by FASD will have varied neurocognitive profiles and the extent of individual impairment may not become apparent until there is formal engagement with education. There is a growing body of evidence on effective interventions to address different aspects of cognitive and behavioural issues associated with FASD, which benefit from exposure to services and supports designed to address these.

While early diagnosis or assessment is optimal to enable early childhood intervention to take place, there are key transitional points along the life course when individuals are likely to benefit from assessment/re-assessment and referral to age appropriate interventions designed to improve daily functioning and participation in education, employment and social opportunities.


While early intervention is optimal, interventions to improve the ability of a person with FASD to function at home, education environment, work or with others in social settings are relevant across the life course.

National Disability Insurance Scheme

Read more

Page last updated 7 February 2019