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This paper explores the importance of incorporating lived experience into training for clinicians and health professionals working with people with FASD and their families.

Date:
July 2023
Journal name:
Research and Practice in Intellectual and Developmental Disabilities
Authors:
Louise Gray, Julie Flanagan and Elizabeth J. Elliott
Page last updated 24 January 2024

Children with FASD have PAE and significant sleep disturbances. What is not clear is the relative contribution of exposure to early life adversity to these disturbances. This study examines how exposure to adversity impacts frequent insomnia symptoms and nightmares in children with FASD and "At Risk" designations.

Date:
July 2023
Journal name:
Alcohol
Authors:
Ned Chandler-Mather, Joseph Betts, Caroline Donovan, Doug Shelton, Sharon Dawe.
Page last updated 17 July 2023

This report summarises the prevalence, social and economical impacts, management and prevention of FASD. It also reports on alcohol consumption and policy context within the Northern Territory.

Date:
February 2015
Authors:
Legislative assembly of the Northern Territory - Select Committee on Action to Prevent FASD
Page last updated 14 July 2023

This position paper outlines the prevalence, prevention, diagnosis, treatment and support of FASD. It proposes 10 recommendations to improve these areas, as well as the overall awareness of FASD in Australia.

Date:
August 2016
Authors:
Australian Medical Association
Page last updated 14 July 2023

This policy document provides a comprehensive overview of the significant and varied harms associated with alcohol, while making recommendations for addressing these harms. It highlights that a comprehensive, multifaceted approach to reducing alcohol-related harm is required.

Date:
February 2016
Authors:
The Royal Australasian College of Physicians, The Royal Australian and New Zealand College of Psychiatrists
Page last updated 14 July 2023

Gilbert + Tobin aims to prompt governments to develop a more inclusive definition of cognitive impairment (including FASD) for use in law and policy. The policy document was launched by Ms June Oscar AO Aboriginal and Torres Strait Islander Social Justice Commissioner and Chief Justice Wayne Martin AC.

Date:
August 2018
Authors:
Gilbert + Tobin
Page last updated 14 July 2023

This systematic review describes allied health and educational interventions and their effectiveness for children and adolescents with fetal alcohol spectrum disorder (FASD), to appraise the quality and strength of these studies. The systematic review included 25 studies with 735 participants. Body function and structure, activity, behaviour, and sense of self outcomes were pooled.

Date:
May 2023
Journal name:
Disability and Rehabilitation
Authors:
Catherine Hilly, Peter Wilson, Barbara Lucas, Thomas McGuckian, Ruth Swanton, Elspeth Froude.
Page last updated 11 May 2023

This review explores literature informing Australian social work in the context of FASD. It highlights the need for increased social work research to inform evidence-based practice (in FASD diagnosis and management using the biopsychosocial-spiritual-cultural framework. Social workers are often first to identify children's emotional, behavioural, and learning difficulties that may be a characteristic of FASD.

Date:
April 2023
Journal name:
Australian Social Work
Authors:
Nirosha Boaden, Jung-Sook Lee, Therese M. Cumming
Page last updated 5 May 2023

Consequences for children born with birth defects and developmental disabilities encompassed by FASD are profound, affecting all areas of social, behavioural and cognitive functioning. Given the strong evidence for a core deficit in executive functioning, underpinned by impaired self-regulation skills, there has been a growing focus on the development of interventions that enhance or support the development of executive functions. This review aims to synthesise the evidence for structured psychological interventions that explicitly aim to improve executive function in children. The review also sought to ascertain if the effectiveness of interventions were influenced by characteristics of the intervention, participants or type of executive function targeted by the intervention.

Date:
November 2022
Journal name:
Campbell Systematic Reviews
Authors:
Joseph Lee Betts, Elizabeth Eggins, Ned Chandler-Mather, Doug Shelton, Haydn Till, Paul Harnett, Sharon Dawe.
Page last updated 20 March 2023

This review paper gives a comprehensive overview of FASD research globally. This paper includes a review of: international prevalence of FASD and FASD; the mechanisms and pathophysiology of prenatal alcohol exposure; diagnosis, screening and prevention; management; quality of life; and outlook.

Date:
February 2023
Journal name:
Nature Reviews Disease Primer
Authors:
Svetlana Popova, Michael E. Charness, Larry Burd, Andi Crawford, H. Eugene Hoyme, Raja Mukherjee, Edward Riley, Elizabeth Elliott.
Page last updated 28 February 2023