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Project Team and Partners

Development of the Australian Guide to the diagnosis of FASD

This research was conducted by the Australian FASD Collaboration.

Lead Investigators

  • Winthrop Research  Professor Carol Bower, Telethon Kids Institute, The University of Western Australia
  • Professor Elizabeth  Elliott AM,  University of Sydney and the Children's Hospital at Westmead


Senior Consultants

  • Dr Lucinda Burns, Nationa Drug and Alcohol Research  Centre, University of NSW
  • Ms Maureen Carter, Nindilingarri Cultural Health Services, Fitzroy Crossing WA
  • Ms Heather D'Antoine, Menzies School of Health Research, Charles Darwin University
  • Dr James Fitzpatrick, The George Institute for Global Health, University of Sydney
  • Assoc Prof Jane  Halliday, Murdoch Childrens Research Institute, University of Melbourne
  • Ms Lorian Hayes, Centre for Chronic Disease, University of Queensland
  • Assoc Prof Jane Latimer, George Institute for Global Health, University of Sydney
  • Ms Anne Mckenzie, Telethon Kids Institute and School of Population Health, The University of Western Australia
  • Ms Sue Miers AM, National Organisation for Fetal Alcohol Spectrum Disorders Australia
  • Dr Raewyn Mutch, Telethon Kids Institute , The University of Western Australia and Child and Adolescent Health Service WA Department of Health
  • Dr Colleen O'Leary, Centre for Population Health Research Curtin University and Telethon Kids Institute
  • Dr Jan Payne, Telethon Kids Institute , The University of Western Australia
  • Dr Elizabeth Peadon, Children's Hospital at Westmead
  • Ms Anne Russell, Russell Family Fetal Alcohol Disorders Association
  • Dr Amanda Wilkins, Telethon Kids Institute , The University of Western Australia and Child and Adolescent Health Service WA Department of Health


Project Team

  • Ms Heather Jones, Telethon Kids Institute,  The University of Western Australia
  • Dr Rochelle Watkins, Telethon Kids Institute, The University of Western Australia

Read more information about this project

 

FASD Diagnostic Instrument Trial and Implementation

Researchers

  • Professor Carol Bower, Principal Senior Research Fellow Telethon Kids Institute
  • Professor Elizabeth Elliott, Professor in Paediatrics and Child Health University of Sydney
  • Dr Rochelle Watkins, Senior Research Fellow Telethon Kids Institute


National Steering Group

  • Professor Carol Bower (Chair): Principal Senior Research Fellow Telethon Kids Institute
  • Mr Scott Avery: Director Policy and Research First Peoples Disability Network
  • Dr Felicity Collins: Head Department of Clinical Genetics Sydney Children's Hospital Network (Westmead)
  • Dr Jennifer Delima: Director Addiction and Clinical Forensic Medicine Alcie Springs Hospital
  • Professor Elizabeth Elliott: Paediatrician Sydney Children's Hospital Network (Westmead) and Professor in Paediatrics and Child Health
  • Dr James Fitzpatrick*: Paediatrician and McCusker Clinical Research Fellow Telethon Kids Institute
  • Ms Andrea Lammel: Brain Mind Research Institute Faculty of Health University of Sydney
  • Ms Vicki Russell*: Chief Executive Officer National Organisation for Fetal Alcohol Spectrum Disorders Australia
  • Dr Doug Shelton*: Paediatrician, Clinical Director Community Child Health and Medical Director Children's Services
  • Dr Linda So: Paediatrician Representative Royal Australian College of Physicians
  • Dr David Thomas: Paediatrician Representative Royal Australian College of Physicians
  • Dr Amanda Wilkins*: Paediatrician WA Child Development Service and Honorary Clinical Research Fellow Telethon Kids Institute
  • Dr Marcel Zimmet: Paediatrician, Sydney Children's Hospital Network (Westmead)


* Also member of the Expert Review Panel

Expert Review Panel

An Expert Review Panel was formed to provide specific expertise on diagnosis.

  • Professor Elizabeth Elliott (Chair): Sydney Children's Hospital Network (Westmead) and Professor in Paediatrics and Child Health
  • Dr Marcel Zimmet: Paediatrician, Sydney Children's Hospital Network (Westmead)
  • Professor Carol Bower: Principal Senior Research Fellow Telethon Kids Institute
  • Dr James Fitzpatrick: Paediatrician and McCusker Clinical Research Fellow Telethon Kids Institute
  • Dr Amanda Wilkins: Paediatrician WA Child Development Service and Honorary Clinical Research Fellow Telethon Kids Institute
  • Dr Doug Shelton: Paediatrician, Clinical Director Community Child Health and Medical Director Children's Services
  • Ms Vicki Russell: Chief Executive Officer National Organisation for Fetal Alcohol Spectrum Disorders Australia


Project staff

  • Ms Juanita Doorey

Read more about this project

 

Development of the FASD E-Learning Modules

Original Modules 2016

Project Leaders: Professor Carol Bower (Telethon Kids Institute) and Professor Elizabeth Elliott (University of Sydney)

Clinical Consultant: Dr Marcel Zimmet (Children's Hospital at Westmead)

Senior Research Officer: Juanita Doorey (Telethon Kids Institute)

Educational design and authoring: Rob Phillips

Graphic design: David Wheeler

Video editing: Robert Bull

Audio recording and editing: Pete Phillips

Video clips from: 'The Story of Alcohol Use in Pregnancy and Fetal Alcohol Spectrum Disorders
Funded by the Foundation for Alcohol Research and Education (FARE)
Produced and narrated by Professor Elizabeth Elliott
Directed and edited by Melanie Hogan, Reverb Pty Ltd

Audio clips spoken by Professor Elizabeth Elliott (University of Sydney and Children's Hospital at Westmead)
Audio recording and editing by Pete Phillips

Diagnostic FASD images courtesy of Susan Astley PhD, Professor of Epidemiology, University of Washington, Seattle

 

Revised modules 2019
Project Leader: Professor Elizabeth Elliott (University of Sydney and Sydney Children’s Hospitals Network (Westmead)

Module content, editing and design: Dr Anne Morris (University of Sydney and Sydney Children’s Hospitals Network (Westmead) and Heather Jones (Telethon Kids Institute)

Page last updated 17 June 2019