The consent and community engagement process for research with Indigenous communities is rarely evaluated. Research protocols are not always collaborative, inclusive or culturally respectful. If participants do not trust or understand the research, selection bias may occur in recruitment, affecting study results potentially denying participants the opportunity to provide more knowledge and greater understanding about their community. Poorly informed consent can also harm the individual participant and the community as a whole.
Publication: MBC Med Ethics
Date: January 2019
Authors: Fitzpatrick EF, Macdonald G, Martiniuk AL, Oscar J, D'Antoine H, Lawford T, Elliott EJ