The Lililwan Project - Fetal Alcohol Spectrum Disorders (FASD) Prevalence Study

To establish the prevalence of FASD and other health and developmental problems in all children born in 2002 and 2003 and residing in the Fitzroy Valley. Determine relationships between pregnancy exposures and neurodevelopmental outcomes.

Project leads:

The George Institute for Global Health
University of Sydney Medical School

Project dates:

2009-2015

Funded by:

Australian Government Department of Health and Ageing

Australian Government Department of Families, Housing, Community Services and Indigenous Affairs

NHMRC Project Grant
(1024474) 2012-15

Publications:

• Elliott E, Latimer J, Fitzpatrick J, Oscar J, Carter M. There's hope in the valley. J Paediatr Child Health. 2012; 48(3): 190-2.

• Fitzpatrick JP, Elliott EJ, Latimer J, Carter M, Oscar J, Ferreira M, et al. The Lililwan Project: study protocol for a population-based active case ascertainment study of the prevalence of fetal alcohol spectrum disorders (FASD) in remote Australian Aboriginal communities. BMJ Open. 2012;2(3). 

• Elliott EJ, Latimer J, Oscar J, Fitzpatrick J, Carter M. The Lililwan Collaboration: Inquiry into Fetal Alcohol Spectrum Disorders (FASD). Submission to the House of Representatives Standing Committee on Social Policy and Legal Affairs.23rdMarch, 2012ISBN: 978-0-9873014-0-6 and 97809873014-1-3 (online)

• Fitzpatrick JP, Latimer J, Ferreira M, Martiniuk AL, Peadon E, Carter M, et al. Development of a reliable questionnaire to assist in the diagnosis of fetal alcohol spectrum disorders (FASD). BMC Pediatr. 2013; 13(1): 33. 

• Barbara R Lucas, Robyn Doney, Jane Latimer, Rochelle E Watkins, Tracey W Tsang, Genevieve Hawkes, James P Fitzpatrick, June Oscar, Maureen Carter Elizabeth J Elliott. Impairment of motor skills in children with fetal alcohol spectrum disorders in remote Australia: The Lililwan Project. Drug and Alcohol Review 2016. DOI: 10.1111/dar.12375

• Barbara R Lucas, Jane Latimer, James P Fitzpatrick, Robyn Doney, Rochelle E Watkins, Tracey W Tsang, Tracy L Jirikowic, Heather Carmichael Olson, June Oscar, Maureen Carter, Elizabeth J Elliott. Soft neurological signs and prenatal alcohol exposure: A population-based study in remote Australia. Developmental Medicine & Child Neurology March 2016 

• Lucas BR, Latimer J, Doney R, Ferreira ML, Adams R, Hawkes G, Fitzpatrick JP, Hand M, Oscar J, Carter M, Elliott EJ. The Bruininks-Oseretsky Test of Motor Proficiency-Short Form is reliable in children living in remote Australian Aboriginal communities. BMC Pediatrics 2013, 13:135 

• Fitzpatrick JP, Carter M, Oscar J, Ferreira ML, Carmichael Olson H, Luca BR, Doney R, Slater C, Try J, Hawkes G, Fitzpatrick E, Hand M, Watkins RE, Martiniuk AL, Bower C, Boulton J, Elliott EJ. Prevalence of Fetal Alcohol Syndrome (FAS) in a population-based cohort of children living in remote Australia: The Lililwan Project. Journal of Paediatrics and Child Health. 2015. 51:450-457  (ABSTRACT ONLY)

• Fitzpatrick JP, Ferreira ML, Carter M, Oscar J, Martiniuk AL, Watkins RE, Elliott EJ. Prevalence and patterns of alcohol use in pregnancy in remote Australia. Drug and Alcohol Review 2015 May;34(3): 329-39

• Barbara R Lucas, Jane Latimer, Robyn Doney, Rochelle E Watkins, Tracey W Tsang, Genevieve Hawkes, James P Fitzpatrick, June Oscar, Maureen Carter, Elizabeth J Elliott. Gross motor performance in children prenatally exposed to alcohol and living in remote Australia. Journal of Paediatrics and Child Health. July 2016 doi:10.111/jpc.132540 

• Robyn Doney, Barbara R Lucas, Tracy Jirikowic, Tracey W Tsang, Rochelle E Watkins, Kay Sauer, Peter Howat, Jane Latimer, James P Fitzpatrick, June Oscar, Maureen Carter, Elizabeth J Elliott. Graphomotor skills in children with prenatal alcohol exposure and fetal alcohol spectrum disorder: A population based study in remote Australia. Aust Occup Ther J 2016 Sep 19. Epub 2016 Dec 19. 

• James P Fitzpatrick, Jane Latimer, Heather Carmichael Olson, Maureen Carter, June Oscar, Barbara R Lucas, Robyn Doney, Claire Salter, Julianne Try, Genevieve Hawkes, Emily Fitzpatrick, Marmingee Hand, Rochelle E Watkins, Tracey W Tsang, Carol Bower, Manuela L Ferreira, John Boulton, Elizabeth J Elliott. Prevalence and profile of Neurodevelopment and Fetal Alcohol Spectrum Disorder (FASD) amongst Australian Aboriginal Children living in remote communities. Research in Developmental Disabilities 2017.

• Tsang TW, Carmichael Olsen H, Latimer J, Fitzpatrick J, Hand M, Oscar J, Carter M, Elliott EJ. Behavior in children with Fetal Alcohol Spectrum Disorders in Remote Australia: A Population-based Study. J Dev Behav Pediatr. doi: 10.1097/DBP.0000000000000463. 

More information