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The Lililwan Project was the first Australian population-based prevalence study of fetal alcohol spectrum disorder (FASD) using active case ascertainment. Conducted in 2010-2011, the study included 95% of all eligible children aged 7-9 years living in the very remote Aboriginal communities of the Fitzroy Valley, Western Australia. The Bigiswun Kid Project follows up the Lililwan cohort in 2020-2022 at age 17-19 years. The aims of this project are to identify adolescents' needs and build knowledge to inform services to improve the health and well-being of adolescents in remote Aboriginal communities.

Date:
March 2022
Journal name:
BMJ Open
Authors:
Lauren J Rice, Tracey W Tsang , Emily Carter, Marmingee Hand, Jadnah Davies , Sue Thomas, Eric Bedford, Emma Bear, Cheyenne Carter, Lisa Cannon, Elizabeth J Elliott
Page last updated 4 April 2022

Impairments caused by pre-natal alcohol exposure contribute to the over-representation of individuals with FASD in the United States juvenile and adult criminal justice systems. These same impairments can equally impact on individuals with FASD who are witnesses to or victims of crime who also have to navigate the complexities of the criminal justice system. Individuals with FASD are particularity at risk of confabulation when they are subjected to tactics, such as stressful and anxiety-provoking situations, threats, and leading, suggestive, or coercive questioning. This article serves as a beginner's guide for professionals working in criminal justice settings by (a) providing research-based overviews of FASD and confabulation, (b) describing how FASD may lead to confabulation, and (c) suggesting ways that professionals can modify protocols when interacting with individuals with FASD.

Date:
January 2022
Journal name:
Behavioral Science and the Law
Authors:
Jerrod Brown Alec Jonason , Erik Asp, Valerie McGinn, Megan N Carter, Vanessa Spiller, Amy Jozan.
Page last updated 21 March 2022

For individuals with FASD, brain-based deficits translate into impulsive behaviors and poorly thought-out decision-making, coupled with an inability to anticipate and recognize the sometimes very severe consequences of their behaviors. Not unexpectedly, individuals with FASD frequently find themselves disproportionately involved in the criminal justice system and mental health services. For some individuals with FASD, these behaviors can also include firesetting. First responders, like other health and legal professionals, are often unable to recognize the behavioral indicators of FASD, primarily due to a lack of training. This article will outline key behavioral symptoms of FASD as well as provide first responders with suggestions as to how to best support individuals when FASD is suspected. The brief quote that follows highlights some of the key challenges facing individuals with FASD and how poor decision-making and impulsiveness can result in severe consequences for the individual and those around them.

Date:
December 2021
Journal name:
Behavioral Sciences and the Law
Authors:
Jerrod Brown, Vanessa Spiller, Megan Carter, Kathi Osmonson, Don Porth, Deanna Bishop-Deaton, Amy Jozan
Page last updated 21 March 2022

Implementation of antenatal clinical guideline recommendations are implemented for addressing maternal alcohol consumption is sub-optimal There is a complete absence of evidence of the cost and cost-effectiveness of delivering practice change interventions addressing maternal alcohol consumption amongst women accessing maternity services. The study sought to determine the cost, cost-consequence and cost-effectiveness of developing and delivering a multi-strategy practice change intervention in three sectors of a health district in New South Wales, Australia.

Date:
February 2022
Journal name:
Implementation Science
Authors:
Zoe Szewczyk, Penny Reeves, Melanie Kingsland, Emma Doherty, Elizabeth Elliott, Luke Wolfenden, Tracey W. Tsang, Adrian Dunlop, Andrew Searles & John Wiggers
Page last updated 18 March 2022

Neurodevelopmental disorders (NDD), including cerebral palsy, autism spectrum disorder and foetal alcohol spectrum disorder, are characterised by impaired development of the early central nervous system, impacting cognitive and/or physical function. Early detection of NDD enables infants to be fast-tracked to early intervention services, optimising outcomes. Aboriginal and Torres Strait Islander infants may experience early life factors increasing their risk of neurodevelopmental vulnerability, which persist into later childhood, further compounding the health inequities experienced by First Nations peoples in Australia. The LEAP-CP prospective cohort study will investigate the efficacy of early screening programmes, implemented in Queensland, Australia to earlier identify Aboriginal and Torres Strait Islander infants who are 'at risk' of adverse neurodevelopmental outcomes (NDO) or NDD.

Date:
January 2022
Journal name:
BMJ Open
Authors:
Carly R Luke, Katherine Benfer, Leeann Mick-Ramsamy, Robert S Ware, Natasha Reid, Arend F Bos, Margot Bosanquet, Roslyn N Boyd.
Page last updated 18 March 2022

This study aims to integrate cultural considerations and developmental screening into a First Nations child health check. The ‘Share and Care Check,’ an optimised child health check, was co-designed with a remote Aboriginal Community Controlled Health Organisation and led by Aboriginal Health Practitioners/Workers. Data obtained from questions regarding cultural and developmental aspects of health can assist health providers regarding the best pathway of support for a child and their family. This could ultimately contribute to closing the gap through the provision of holistic culturally appropriate services. This paper was published in 2022.

Date:
March 2022
Journal name:
Australian Journal of Primary Health
Authors:
Natasha Reid, Marjad Page, Theresa McDonald, Erinn Hawkins , Wei Liu, Heidi Webster, Codi White, Doug Shelton, Mary Katsikitis , Andrew Wood, Bronwyn Draper, Karen Moritz and Dianne C. Shanley.
Page last updated 18 March 2022

Accurate information on dose, frequency and timing of maternal alcohol consumption is critically important when investigating fetal risks from prenatal alcohol exposure. Identification of distinct alcohol use behaviours can also assist in developing directed public health messages about possible adverse child outcomes, including Fetal Alcohol Spectrum Disorder. This study published in 2022 aimed to determine group-based trajectories of time-specific, unit-level, alcohol consumption using data from 1458 pregnant women in the Asking Questions about Alcohol in Pregnancy (AQUA) longitudinal study in Melbourne, Australia.

Date:
March 2022
Journal name:
Scientifc Reports
Authors:
Evelyne Muggli, Stephen Hearps, Jane Halliday, Elizabeth J. Elliott, Anthony Penington, Deanne K. Thompson, Alicia Spittle, Della A. Forster, Sharon Lewis & Peter J. Anderson
Page last updated 18 March 2022

The FASD Research Australia Centre of Research Excellence (CRE) was funded by the National Health and Medical Research Council to generate and translate evidence to address prevention, diagnosis, and management of FASD in Australia. Published in 2022, this paper describes the approach to policy and practice impact taken by this CRE, including stakeholder engagement processes and the key principles that underlie the approach. The publication provides examples of policy and practice influence in FASD prevention, diagnosis and management that have been achieved over the past five years and discusses challenges that are routinely faced in the translation of work.

Date:
March 2022
Journal name:
International Journal of Population Data Science
Authors:
Amy Finlay-Jones, Elizabeth Elliott, Astrid Chapman, Jane Halliday, Heather Jones, Natalie Kippin, Narelle Mullan, Hayley Passmore, Tracy Reibel, Neil Reynolds, Martyn Symons, Tracey W Tsang, Rochelle Watkins, and Carol Bower.
Page last updated 18 March 2022

This review published in 2022 proposes a theoretical framework to support professionals in collaborating with families in the provision of services for children with fetal alcohol spectrum disorders (FASD). Existing models of family-directed care and family contextual factors relevant to planning interventions were reviewed. This information was adapted and integrated in the context of available evidence regarding the provision of evidence-based approaches for children with FASD and their families.

Date:
January 2022
Journal name:
Current Developmental Disorders Reports
Authors:
Natasha Reid, Andi Crawford, Christie Petrenko, Julie Kable & Heather Carmichael Olson
Page last updated 18 March 2022

Young people with neurodevelopmental disorders are overrepresented in the youth justice system and face many disadvantages due to their impairments. This study published in 2022 investigated what factors predict and contribute to the behavior of youth justice professionals working in the Queensland (QLD) youth justice system, utilizing a behavior change wheel framework and providing helpful directions to better support young people with neurodevelopmental conditions who are involved with the QLD youth justice system.

Date:
January 2022
Journal name:
International Journal of Forensic Mental Health
Authors:
Alanna Heanue, Matthew J. Gullo, Nicole Hayes, Hayley Passmore &Natasha Reid
Page last updated 18 March 2022