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As part of the Yapatjarrathati project, 47 remote health providers and community members attended a two-day workshop presenting a prototype of a culturally-safe, tiered neurodevelopmental assessment that can identify FASD in primary healthcare. Narrative analysis of the workshop transcript highlighted a collective sense of compassion for those who use alcohol to cope with intergenerational trauma, but exhaustion at the cyclical nature of FASD. There was a strong desire for a shared responsibility for First Nations children and families and a more prominent role for Aboriginal Health Workers in the assessment process. This study emphasised the benefit of continued co-design to ensure health implementation strategies match the needs of the community.
- Date:
- September 2022
- Journal name:
- International Journal of Environmental Research and Public Health
- Authors:
- Luke Miller, Dianne C Shanley, Marjad Page, Heidi Webster, Wei Liu, Natasha Reid, Doug Shelton, Karen West, Joan Marshall, Erinn Hawkins.
The Lililwan Project was the first Australian population-based prevalence study of fetal alcohol spectrum disorder (FASD) using active case ascertainment. Conducted in 2010-2011, the study included 95% of all eligible children aged 7-9 years living in the very remote Aboriginal communities of the Fitzroy Valley, Western Australia. The Bigiswun Kid Project follows up the Lililwan cohort in 2020-2022 at age 17-19 years. The aims of this project are to identify adolescents' needs and build knowledge to inform services to improve the health and well-being of adolescents in remote Aboriginal communities.
- Date:
- March 2022
- Journal name:
- BMJ Open
- Authors:
- Lauren J Rice, Tracey W Tsang , Emily Carter, Marmingee Hand, Jadnah Davies , Sue Thomas, Eric Bedford, Emma Bear, Cheyenne Carter, Lisa Cannon, Elizabeth J Elliott
This study aims to integrate cultural considerations and developmental screening into a First Nations child health check. The ‘Share and Care Check,’ an optimised child health check, was co-designed with a remote Aboriginal Community Controlled Health Organisation and led by Aboriginal Health Practitioners/Workers. Data obtained from questions regarding cultural and developmental aspects of health can assist health providers regarding the best pathway of support for a child and their family. This could ultimately contribute to closing the gap through the provision of holistic culturally appropriate services. This paper was published in 2022.
- Date:
- March 2022
- Journal name:
- Australian Journal of Primary Health
- Authors:
- Natasha Reid, Marjad Page, Theresa McDonald, Erinn Hawkins , Wei Liu, Heidi Webster, Codi White, Doug Shelton, Mary Katsikitis , Andrew Wood, Bronwyn Draper, Karen Moritz and Dianne C. Shanley.
A critical review of existing research was conducted in 2020 using a critical interpretive synthesis approach. Results revealed that whilst many studies discussed impacts at the body functions and structures level of children with FASD, they often did not consider the activity, participation, and environmental factors also contributing to the daily functioning of this population. Several studies discussed caregiver experiences and challenges raising a child with FASD; however, no studies investigated the lived experiences relating to impacts across activities and environments from children's perspectives. In addition, the focus on deficits overshadowed investigation into the strengths of children with FASD, leaving a gap in the picture of their daily lives.
- Date:
- April 2020
- Journal name:
- Alcoholism: Clinical and Experimental Research, 44 (6)
- Authors:
- Skorka, Kelly McBryde, Catherine Copley, Jodie Meredith, Pamela J Reid, Natasha